Meet Ava Bullis as She Transitions to a New School

Ava is an 11-year-old girl with Usher Syndrome. Ava was born profoundly deaf at birth and is slowly going blind. Although Ava receives benefit from the use of her cochlear implants and a cane during the day, she is completely blind by night and communicates using tactile ASL alphabet and touch signals.


Ava spends her free time sharing her story publicly to advocate for all children with hearing and/or vision loss especially those who may not have the ability to communicate on their own. She also enjoy meeting new parents to provide comfort and hope as their babies are newly diagnosed.


National Center on Deaf-Blindness'
"Families Matter Stories" featuring Ava!


Told mostly through video, the NCDB introduces you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.

Visit NCDB's "Families Matter Stories" to get Ava's (and other's) full interviews!  

Take a look:
"Behind a Closed Door"
A poem by Ava Bullis

© 2019 by Ava's Voice

Ava’s Voice is an official USH Partner of the Usher Syndrome Coalition

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