1st Usher Syndrome Parent Circle featuring parents left to right: Sandy, Lisa, Carly, Paul, Pam and Carlito

The Ava's Voice Usher Syndrome Parent Circle is an opportunity for families to get together, share stories, ask questions and have a community of support throughout their journey. It provides a safe place for children with Usher Syndrome and their siblings to connect with other children like themselves. 

The Parent Circle will be hosted four times throughout the school year and one social event will be held in the summer! 

Our next Parent Circle will be held at the end of April stay tuned for details....


Calling all Fathers, Step-fathers, Grandfathers, Uncles, and Nephews! This survey is part of a research study on the experiences of father figures of school-aged children with deaf blindness (ages 3-21). Take the survey HERE!

© 2019 by Ava's Voice

Ava’s Voice is an official USH Partner of the Usher Syndrome Coalition

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